About #NOTJUSTFATIGUE

The mission of the 501(c)(3) #NotJustFatigue is to speak the truth about ME/CFS through creative content that’s deeply personal and unapologetically emotional. Via film, photography, storytelling, and interactive experiences, we aim to connect with people in a way that medical and political rhetoric cannot. We want to confront a long history of neglect, bring those with the disease out of the shadows, and forge a path forward. Together, we can reclaim the narrative around ME/CFS.

DONATE TO #NOTJUSTFATIGUE

We want to continue our ME/CFS education and advocacy efforts. Click here to donate.

PRESS

AWARDS

PUBLICATIONS

2025 ME/CFS Economic Report
2026 ME/CFS Caregiving Report (coming soon)

INTERESTED IN MORE ME/CFS INFORMATION?

Please visit the following organizations:

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products