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Future

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There are no FDA approved treatments for ME/CFS nor are there any laboratory tests for it

As many as 45% of people with Long Covid fit the case definition for ME/CFS

90% of people living with ME/CFS have not been diagnosed

Before the pandemic, as many as 2.5 million americans had ME/CFS, but now an estimated 9 million Americans do

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25% of people with ME/CFS are homebound or bedbound

3 times as many women than men are living with ME/CFS

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In 2022, multiple sclerosis received $121 million in funding from NIH. ME/CFS received only $13 million, despite being a more common illness with a more impaired quality of life. ME/CFS is our nation's most underfunded disease with respect to severity of the disease and the number of people affected.

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An infectious episode is recounted by 80% of people at the start of their illness.

70% of people with ME/CFS are unable to work full time

ME/CFS occurs in people of all ages, races, and socioeconomic groups. Everyone is at risk.

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ME/CFS is costing taxpayers as much as $362 billion dollars a year.

Fewer than 1/3 of medical curriculums currently address ME/CFS, and less than 1/2 of medical textbooks contain information about the disease

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Understanding ME/CFS

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products