May 17, 2026

Last week, #NotJustFatigue was in Washington, D.C. for ME/CFS Awareness Day

May 14, 2026

Elizabeth Ansell recently joined Alycia on the Pushing Forward with Alycia podcast

May 12, 2026

It’s May 12, International ME/CFS Awareness Day, a day to recognize, honor, and discuss everyone with ME/CFS

April 13, 2026

Introducing our new three-part video series, ME/CFS and the Family

March 10, 2026

Our latest video tackles medical gaslighting head-on: what it looks like and why it happens.

March 5, 2026

The ask is specific: resources directed to the Office of the Director to support implementation of the NIH ME/CFS Research Roadmap, including biomarker discovery, diagnostic tool development, and clinical trials.

February 13, 2026

On February 13, 2026, we sent a formal letter to the Director of the National Institutes of Health urging decisive action on the ME/CFS Research Roadmap and its required implementation plan.

February 4, 2026

Our founder shared a personal op-ed in BizWomen titled “In Her Own Words,” where she wrote candidly about her lived experience with ME/CFS and the economic and human impact of the disease.

February 3, 2026

On February 3rd, a major development for the ME/CFS community moved one step closer to becoming law: the Labor–HHS appropriations bill passed Congress and just needs the President’s signature.

January 30, 2026

More than 500,000 unique visitors from around the world have turned to NotJustFatigue.org to learn about this disease.

January 20, 2026

The FY26 Labor-HHS joint explanatory statement is now out, and the package should be on track for passage by the January 30 deadline, or shortly thereafter.

January 16, 2026

A newly published article in Nature outlining the National Institute of Allergy and Infectious Diseases’ updated vision explicitly names ME/CFS as a priority.

December 24, 2025

“Washington is ignoring a $362 billion chronic illness” is sparking important conversations about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) at home and in Washington.

December 20, 2025

We’ve just released our new trailer on social media, and it captures the heart of why #NotJustFatigue exists.

December 12, 2025

We recently released a new video on social media highlighting a frustrating, but deeply familiar experience for people with chronic illness: symptomsplaining.

November 12, 2025

The holidays are often framed as a time of joy, gatherings, and tradition. But for many people living with chronic illnesses such as ME/CFS, Long COVID, POTS, and autoimmune conditions, this season can bring unique challenges.

November 11, 2025

We’re encouraged to see Long Covid Weekly spotlight #NotJustFatigue’s Invisible Illness Report, a first-of-its-kind survey examining the financial consequences of living with ME/CFS.

October 21, 2025

We’re thrilled to share that #NotJustFatigue has been recognized with five 2025 Davey Awards

October 3, 2025

On September 25, 2025, #NotJustFatigue hosted a first-of-its-kind virtual congressional briefing, bringing together leading researchers, people with ME/CFS, and policymakers in one room.

October 1, 2025

Dr. W. Ian Lipkin is one of the world’s leading experts in pathogen discovery and infectious disease, and for the past two decades he has turned his focus to ME/CFS.

September 30, 2025

We’re proud to share that #NotJustFatigue has been recognized with four 2025 w3 Awards!

September 27, 2025

#NotJustFatigue founder Elizabeth Ansell joined episode 48 of the That Chronic Thing podcast to talk about the mission behind the organization.

September 25, 2025

Something meaningful happened today: congressional staffers, journalists, researchers, and people living with ME/CFS all gathered in the same virtual room for our briefing, Suffering in Silence: The Urgent Case for Congressional Action on ME/CFS.

August 18, 2025

#NotJustFatigue founder Elizabeth Ansell sat down with the It Happened To Me podcast to talk about what it actually means to live with severe ME/CFS, and to build something meaningful from inside it.

August 11, 2025

#NotJustFatigue founder Elizabeth Ansell shared her story with Authority Magazine, how a devastating ME/CFS crash in 2016 left her bedbound, and how the six years that followed became the foundation for an award-winning advocacy platform she never could have anticipated building.

August 1, 2025

Big win. Congress has officially recognized the ME/CFS Research Roadmap in the Senate report and is now directing NIH to create a detailed implementation plan within 180 days.

July 28, 2025

#NotJustFatigue, as well as MEAction and Solve M.E. sent a letter to the Senate and House Appropriations Committees...

July 23, 2025

Our founder Elizabeth Ansell joined Dr. Katie Peters on the Brain & Life Podcast for a two-part conversation about ME/CFS, medical validation, and why the patient community has been ahead of the curve on post-viral illness for decades.

June 4, 2025

A neurologist once told Elizabeth that all of her symptoms would get better if she had a boyfriend. This was his actual medical opinion.

May 22, 2025

We were named Audience Honoree at the Shorty Awards in not one but two categories, Social Activism and Website/App.