Something meaningful happened today: congressional staffers, journalists, researchers, and people living with ME/CFS all gathered in the same virtual room for our briefing, Suffering in Silence: The Urgent Case for Congressional Action on ME/CFS. To the staffers who carved out time in their day, your presence sent a powerful signal that this community is being heard. To everyone who showed up from their beds, their dark rooms, their limited energy envelopes, thank you for being there.

During the event, we also premiered a new video on Dr. Maureen Hanson of Cornell University, one of the country’s leading ME/CFS researchers. Dr. Hanson has spent two decades studying the biological underpinnings of this disease, including what goes wrong after exertion, why T-cell exhaustion may be a key piece of the puzzle, and why she believes breakthroughs are within reach if funding finally matches the scale of the problem. Her son has ME/CFS. This work is personal, and it shows.

The livestream is now available to watch on demand at notjustfatiguelivestream.org. The video on Dr. Maureen Hanson is available here: