Loading

Video Series

Explore a ten part, documentary style, short form video series on ME/CFS. Each video tackles a particularly challenging aspect of living with the disease.

Video 01

You Could Be Next

Research tells us that ME/CFS affects people of all ages, races, and socioeconomic groups. Everyone is at risk. You could be next.

Video 02

Spend A Day With Me

Forget the medical jargon. We asked people with ME/CFS what it’s like to live with the disease in their own words. Here’s what they had to say.

Video 03

You Have No Idea How Serious This Is

In 1988, the CDC named the disease “Chronic Fatigue Syndrome”, which set in motion decades of stigmatization of those suffering. While the US government currently uses the term “ME/CFS” on their websites, the trivialization of the condition due to the name still remains. Let’s confront this head on.

Video 04

Get Out Of My Office

With fewer than ⅓ of medical school curriculums currently addressing ME/CFS and less than ½ of medical textbooks containing information about the disease, it’s undeniable that ME/CFS has slipped through the cracks of our modern medical system. This needs to change in order for people with ME/CFS to get the help that they need.

Video 05

POV: I Went Over My Energy Limit

Contrary to popular belief, the hallmark symptom of ME/CFS is not fatigue, but rather post exertional malaise.  PEM, or a crash, can occur at any time, after any sort of physical, emotional, or mental exertion. Many people with ME/CFS describe PEM as their most limiting symptom.

Video 06

Nobody Believes Me

Many people living with ME/CFS are dismissed and not believed, oftentimes even by those closest to them.  That in and of itself can be a traumatic experience, serving to further exacerbate the pain of the disease, and highlight the lack of support of those affected.

Video 07

It’s Not Hysteria; It’s Sexism

Is it a coincidence that three times more women than men are living with ME/CFS and ME/CFS is our country’s most underfunded disease, with respect to the severity of the disease and the number of people affected? No.

Video 08

Explain ME/CFS To Me

What is ME/CFS? We asked some experts to describe the disease in layman’s terms.  Here’s how they responded.

Video 09

When Friends And Family Don’t Understand

Living in a society that fails to acknowledge the pain and severity of ME/CFS is challenging.  Friends and family might not understand the disease, and watching peers continue on with their lives, while the disease takes its toll, can be torturous.

Video 10

All Talk, No Action

How do we find a cure for ME/CFS? Stop the lip service and get the government to fund clinical trials for the disease.  It’s time to sound the alarm on this health crisis.

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products