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WORKS CITED

Misinformation is a serious, emerging problem in our world. Be sure about all our facts and figures with our extensive references.

  1. 1

    “About the Disease.” Solve ME/CFS Initiative, 17 Aug. 2023, https://solvecfs.org/me-cfs-long-covid/about-the-disease/.

  2. 2

    Backman, Isabella. “Will Long COVID Research Provide Answers for Poorly Understood Diseases like ME/CFS?” Yale School of Medicine, 1 Nov. 2022, https://medicine.yale.edu/news-article/will-long-covid-research-provide-answers-for-poorly-understood-ailments-like-chronic-fatigue/.

  3. 3

    Bateman, Lucinda, et al. “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials Of ...” Mayo Clinic Proceedings, 25 Aug. 2021, https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/pdf.

  4. 4

    “Chronic Fatigue Initiative.” Cfinitiative.Org, Chronic Fatigue Initiative at Hutchins Family Foundation, http://cfinitiative.org/lead-researchers/daniel-peterson. Accessed 24 Aug. 2023.

  5. 5

    Cressey, Daniel. “XMRV Paper Withdrawn.” Nature News, Nature Publishing Group, 22 Dec. 2011, https://www.nature.com/articles/nature.2011.9720.

  6. 6

    Dusenbery, Maya. Doing Harm. HarperOne, 2019.

  7. 7

    Geraghty KJ. ‘PACE-Gate’: When clinical trial evidence meets open data access. Journal of Health Psychology. 2017; 22(9): 1106- 1112. doi: 10.1177 / 1359105316675213

  8. 8

    Hooper, M. “Myalgic Encephalomyelitis: A Review with Emphasis on Key Findings in Biomedical Research.” Journal of Clinical Pathology, U.S.National Library of Medicine, May 2007, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1994528/#:~:text=The%20term%20%E2%80%9Cmyalgic%20encephalomyelitis%E2%80%9D%20.

  9. 9

    Institute of Medicine of the National Academies. Beyond Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: Redefining an Illness.The National Academies Press, 2015.

  10. 10

    Jakobsen, Siw Ellen. “Chronic Fatigue Syndrome across Time?” Sciencenorway, 28 Nov. 2013, https://www.sciencenorway.no/chronic-fatigue-syndrome-forskningno-history-of-medicine/chronic-fatigue-syndrome-across-time/1393570.

  11. 11

    Jason, Leonard A, et al. “CFS: A Review of Epidemiology and Natural History Studies.” Bulletin of the IACFS / ME, U.S.National Library of Medicine, 14 Jan. 2011, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3021257/.

  12. 12

    Johnson, Hillary. Osler’s Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic.Crown Publishers, 1996.

  13. 13

    Komaroff, Anthony L., and W. Ian Lipkin. “ME/CFS and Long Covid Share Similar Symptoms and Biological Abnormalities: Road Map to the Literature.” Frontiers, Frontiers, 9 May 2023, https://www.frontiersin.org/articles/10.3389/fmed.2023.1187163/full.

  14. 14

    “ME/CFS Advocacy Call - July 19, 2018.” National Institutes of Health, U.S. Department of Health and Human Services, 2 Aug. 2018, https://www.nih.gov/research-training/medical-research-initiatives/mecfs/nih-me/cfs-advocacy-call-july-19-2018.

  15. 15

    “ME/CFS: Making Strides to Enhance the Lives of Those Living with ME/CFS.” Centers for Disease Control and Prevention, 14 May 2019, https://blogs.cdc.gov/publichealthmatters/2017/05/me-cfs/

  16. 16

    Mirin, Arthur A., et al. “Research Update: The Relation between ME/CFS Disease Burden and Research Funding in the USA.” Work, IOS Press, 1 Jan. 2020, https://content.iospress.com/articles/work/wor203173.

  17. 17

    Mirin, Arthur, et al. “Updated ME/CFS Prevalence Estimates Reflecting Post-Covid Increases And ...” Taylor and Francis Online, 11 Apr. 2022, https://www.tandfonline.com/doi/full/10.1080/21641846.2022.2062169.

  18. 18

    Myalgic Encephalomyelitis (“Chronic Fatigue Syndrome”), New York State Department of Health, Dec. 2021, https://www.health.ny.gov/diseases/conditions/me-cfs/.

  19. 19

    “NIH Intramural Study on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.” National Institutes of Health, U.S.Department of Health and Human Services, https://clinicalstudies.info.nih.gov/protocoldetails.aspx?id=16-N-0058.

  20. 20

    Rehmeyer, Julie. “Bad Science Misled Millions with Chronic Fatigue Syndrome. Here’s How We Fought Back.” STAT, 21 Sept. 2016, https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/.

  21. 21

    “Report.” National Institutes of Health, U.S. Department of Health and Human Services, 31 Mar. 2023, https://report.nih.gov/funding/categorical-spending#/.

  22. 22

    STRAUS, S, et al. “Allergy and the chronic fatigue syndrome.” Journal of Allergy and Clinical Immunology, vol. 81, no. 5, May 1988, pp. 791–795, https://doi.org/10.1016/0091-6749(88)90933-5.

  23. 23

    Straus, Stephen E. MD. “RE: CFS Article.” 1993?. National Institutes of Health, Bethesda, Maryland. https://d3n8a8pro7vhmx.cloudfront.net/meadvocacy/pages/167/attachments/original/1585814547/Strauss-Fukuda_Letter.pdf?1585814547

  24. 24

    “Unrest (2017).” Unrest (2017) | ME/CFS SA, 17 May 2023, https://mecfssa.org.au/resources/unrest.

  25. 25

    US Newswire (defunct; sold to PR Newswire). “Misuse of Chronic Fatigue Syndrome Research Monies by CDC Admitted.” Newswise, Newswise, 30 July 1999, www.newswise.com/articles/misuse-of-chronic-fatigue-syndrome-research-monies-by-cdcadmitted.

  26. 26

    Vincent C. Lombardi et al., Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome.Science 326, 585 - 589(2009).DOI: 10.1126 / science.1179052

  27. 27

    “What Is Long Covid?” Solve ME/CFS Initiative, 13 Feb. 2023, https://solvecfs.org/me-cfs-long-covid/what-is-long-covid/.

  28. 28

    “What Role Do Sex and Gender Play in Lupus?” Lupus Foundation of America, 26 Oct. 2021, https://www.lupus.org/resources/what-role-do-sex-and-gender-play-in-lupus#:~:text=Anyone%20can%20develop%20lupus%2C%20but,people%20with%20lupus%20are%20women.

  29. 29

    White PD, Goldsmith KA, Johnson AL, Potts L, et al. Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome(PACE): a randomised trial.Lancet. 2011; 377(9768): 823–836. doi: 10.1016 / S0140 - 6736(11)60096 - 2.

  30. 30

    “Who Gets MS?” National Multiple Sclerosis Society, https://www.nationalmssociety.org/What-is-MS/Who-Gets-MS.

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products