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Local Voices, Real Impact: Why Our Founder’s CT Mirror Op-Ed Matters for ME/CFS Advocacy

December 24, 2025

We’re proud to share that our founder’s op-ed  “Washington is ignoring a $362 billion chronic illness” is sparking important conversations about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) at home and in Washington. In the piece, Elizabeth Ansell outlines how ME/CFS affects millions of Americans, including people in Connecticut, while federal research funding remains far below what this debilitating disease demands. This first-hand perspective puts a human face on the statistics and underscores the urgency for policymakers to act. 

Local news outlets like CT Mirror play a crucial role in advocacy because they connect our representatives directly with the lived experiences of their constituents. When lawmakers see that ME/CFS isn’t an abstract issue but one that affects their neighbors, families, and friends, it deepens understanding and accountability. Stories like this help bridge the gap between national policy debates and the real people behind them, and that can make all the difference in pushing for meaningful change.

https://ctmirror.org/2025/12/24/washington-is-ignoring-a-362-billion-chronic-illness

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products