Local Voices, Real Impact: Why Our Founder’s CT Mirror Op-Ed Matters for ME/CFS Advocacy
December 24, 2025
Click here to view our Economic Report on ME/CFS
December 24, 2025
CDC
The Center for Disease Control protects the United States’ health from threats using science and data
NIH
The National Institute of Health aims to discover new information that will result in better health for everyone
National Academies of Medicine
Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues
WHO
The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable
PACE
Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”
The Lancet
One of the world’s highest impact, most prestigious academic journals
FDA
The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products
We’re proud to share that our founder’s op-ed “Washington is ignoring a $362 billion chronic illness” is sparking important conversations about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) at home and in Washington. In the piece, Elizabeth Ansell outlines how ME/CFS affects millions of Americans, including people in Connecticut, while federal research funding remains far below what this debilitating disease demands. This first-hand perspective puts a human face on the statistics and underscores the urgency for policymakers to act.
Local news outlets like CT Mirror play a crucial role in advocacy because they connect our representatives directly with the lived experiences of their constituents. When lawmakers see that ME/CFS isn’t an abstract issue but one that affects their neighbors, families, and friends, it deepens understanding and accountability. Stories like this help bridge the gap between national policy debates and the real people behind them, and that can make all the difference in pushing for meaningful change.
https://ctmirror.org/2025/12/24/washington-is-ignoring-a-362-billion-chronic-illness