Elizabeth Ansell of #NotJustFatigue on the That Chronic Thing Podcast

September 27, 2025

#NotJustFatigue founder Elizabeth Ansell joined episode 48 of the That Chronic Thing podcast to talk about the mission behind the organization: a 501(c)(3) using digestible, creative content to sound the alarm on ME/CFS and advocate for people with the disease. The conversation covers what this disease actually is, why the name “Chronic Fatigue Syndrome” has long obscured its severity, and how notjustfatigue.org was built to give patients something to send to the people in their lives who just don’t get it yet.

The numbers tell the story: 75% of those with ME/CFS are unable to work or attend school, 25% are completely homebound or bedbound, there are no FDA-approved treatments or diagnostics, and 45% of the long COVID community meets the case definition for ME/CFS.

Listen to the full episode on Apple Podcasts or Spotify.

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products

GLOSSARY

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