ME/CFS Awareness Day 2026

May 12, 2026

It’s May 12, International ME/CFS Awareness Day, a day to recognize, honor, and discuss everyone with ME/CFS, a complex neuroimmune, neuro inflammatory disease whose hallmark symptom is post exertional malaise. Post exertional malaise is the worsening of symptoms after any physical, mental, or emotional effort.

ME/CFS affects at least 3.3 million Americans alone and has one of the worst quality of lives of any disease quantified. 25% of people with ME/CFS are completely home bound or bedbound.

At #NotJustFatigue, we’re building awareness and advocating every day. We’re particularly proud of our work in the Congressional appropriations process over the past two years, and we’re absolutely hopeful more is to come.

This is #NotJustFatigue.

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products

GLOSSARY

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