The Trailer Is Live: A Glimpse Into the Reality of ME/CFS

December 20, 2025

We’ve just released our new trailer on social media, and it captures the heart of why #NotJustFatigue exists. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) affects an estimated 3.3 million Americans, yet remains widely misunderstood, under-researched, and too often minimized. There are still no FDA-approved treatments, despite research showing that ME/CFS carries one of the lowest quality-of-life scores of any disease. The science is advancing. The urgency is real. What’s missing is the level of funding and attention this community has long deserved.

This trailer is more than an awareness piece. It's an invitation to understand the scale, severity, and human impact of ME/CFS. Everyone is at risk. Anyone can be affected. If you haven’t seen it yet, we encourage you to watch, share, and help broaden the conversation.

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products