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ME/CFS and the Family: A New Video Series from #NotJustFatigue

April 13, 2026

ME/CFS doesn’t stop at one person. While the person living with it carries the heaviest burden, like the debilitating symptoms, the losses, the daily fight, this disease reaches into every corner of a family’s life. Our new three-part video series, ME/CFS and the Family, brings those voices forward: the parents and siblings navigating their own reality alongside someone they love.

You’ll hear honest accounts of what life actually looks like when a devastating illness goes without adequate research, without FDA-approved treatments, without trained clinicians, and without public understanding. That absence of support prolongs suffering in ways that are entirely preventable, and it’s exactly what #NotJustFatigue exists to change.​​​​​​​​​​​​​​​​

All three videos in the series are linked below in order:

GLOSSARY

CDC

The Center for Disease Control protects the United States’ health from threats using science and data

NIH

The National Institute of Health aims to discover new information that will result in better health for everyone

National Academies of Medicine

Previously called the Institute of Medicine, this nonprofit, private organization was created to advise the country on relevant issues

WHO

The World Health Organization works worldwide to promote health, promote safety, and serve the vulnerable

PACE

Short for “Pacing, graded Activity, and Cognitive behavioral therapy; a randomized Evaluation”

The Lancet

One of the world’s highest impact, most prestigious academic journals

FDA

The Food and Drug Administration protects American health by overseeing food, drugs, cosmetics, animal food, dietary supplements, medical devices, biological goods, and blood products

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