Today, #NotJustFatigue is launching our new researcher profile video featuring Lucinda Bateman, MD, founder and medical director of the Bateman Horne Center.

For decades, people with ME/CFS have been dismissed, minimized, misunderstood, and too often left to manage a devastating illness without the urgency, research funding, or clinical care they deserve. Dr. Bateman’s work stands in direct contrast to that history. She has spent her career listening to patients, studying post-viral illness, educating clinicians, and pushing for a more serious medical understanding of ME/CFS, Long COVID, fibromyalgia, and related conditions.

This video is part of our effort to highlight the researchers and clinicians who are doing the hard, often under-recognized work of moving the field forward. For people living with ME/CFS, this work is deeply personal. Research is not just about studies or data points; it is about proving the reality of an illness that has stolen lives, careers, independence, and time.

ME/CFS is not “just fatigue.” It is a complex, life-altering disease that can leave people housebound, bedbound, and cut off from the lives they once knew. The path toward better diagnostics, treatments, and care depends on researchers and clinicians who understand the severity of the illness and are willing to keep asking better questions.

We’re grateful to Dr. Bateman for her years of dedication to this community and honored to share her story.

Watch the full video now and help us spread the word.